Caregiving – lifeinthethe8tre

February 13, 2020

The Father

Before attending The Father by Florian Zeller at the Pasadena Playhouse, I met my friend Cathy at the Urth Caffe for dinner. It was also the first meeting of our writer’s group of two, formed when I shyly asked her to join me after my un-birthday tea. Saturday I arrived at the restaurant fifteen minutes early, with a typed paper listing my goals for our writer’s group.

If it isn’t already obvious, I’ve never been in a writer’s group. I don’t know from writer group etiquette. That was clear when I created a doodle poll to figure out possible meeting times. For the two of us who were meeting in an hour for dinner…

No doodles, intoned Cathy, in her deadpan delivery that always makes me laugh.

I was fine with that, having spent the entire last week filling in my “empty time” with doodle polls at work. So many meeting seeds planted, few of them surviving.

It will be more organic, Cathy reassured me.

Organic is a terrifying concept to stage/production managers. Doodles we do just fine, organic not so much.

We ordered our food and sat down at a metal cafe table outside near the heaters. I unfurled my pretentious little sheet, which I’d brought two copies of so we could each look at a copy. Thoughtful, eh? When our salads arrived, I looked lustfully at the piles of hearts of palm. Cathy interrogated the waiter about whether that was really what she’d ordered. He smiled shyly, picking up our numbers before walking away.

After dinner, we walked away from the Urth Caffe, down the Playhouse Alley full of so much personal history, to the front courtyard where we entered the State Theatre of California. We climbed the sloping carpeted stairs to the balcony and found our seats in the rear most row. This was the second time in recent history I’d found myself closer to the booth than the stage. Saturday night, fresh inside from the unseasonably cold evening, all the heat of the theatre rose to meet us. We stripped off as many layers of clothing as we legally could, then fanned ourselves with our programs while we talked about Valentine’s Day coming up. Conspiratorially, I leaned into her and confided a secret which made us gasp and burst into uncontrolled laughter. As people started to fill in the seats around us, I became aware that given the topic of the play, our inane giggling was inappropriate, which of course made us giggle more. We riffed on the fact that we should write a scene with two women of a certain age in the week before Valentine’s Day, giggling about the unspeakable in the moments before a play about the dangers of aging.

Soon the play unfolded under the careful direction of Jessica Kubzansky, a thriller of sorts: deft scenic design by David Meyer, immersive sound by John Zalewski, and heart stopping cessations of normalcy that Elizabeth Harper provided in blackouts that punctuate each chapter of the evening. The play delivers a gut-wrenching and unreliable narrative familiar to anyone who has been dementia-adjacent. Costume Designer Denitsa Bliznakova facilitated our confusion with details that called into question who was really narrating the play. Audience members question what we’re seeing as though our own memory has begun to slip. The cleverness of the designers’ work guided by Kubzansky is breathtaking. Alfred Molina, as the titular Father, is by turns charming and reprehensible, confident then lost. He’s supported by a cast of characters with impressive range. The effect is sobering, sometimes funny and ultimately devastating.

I’ve always loved the arc of the phases of enjoyment related to theatre going.

First, there’s the delicious anticipation which begins the moment you select your seats on the theatre’s virtual seating map. Earlier in the week, I’d been warned by one of my colleagues that at the New York production, people were screaming and crying in the theatre. I can’t imagine going to the theatre and having people scream (maybe at a curtain call with positive feedback). So thinking that we might have a moment like that made me want to see it even more. I’d worked with Alfred Molina and was looking forward to seeing performances by Michael Manuel, and Pia Shah. I was looking forward to going to the play with Cathy, all of that return on investment before my ticket was even scanned at the door.

Once, my husband, Jimmie, told me about the curtain call for The Changeling at Lincoln Center, where the audience stood and booed and hissed loudly while pointing at the actors in their monstrous codpieces on stage. Have you ever had an experience like that? I haven’t, but live in eternal hope.

Phase two: there’s the play itself, approximately two hours where immersing yourself in the world of the play unpeels all the world’s worries from your brain. I’m amazed every time I go to the theatre by the creative splendors of playwrights’ stories, the artistry of a director’s vision shaping how those stories are told. For me, every theatrical outing is an opportunity to admire and critique other theatre artists’ work; it’s research, a way to expand my personal theatrical canon. From the first moments when we sat down, I admired Meyer’s beautiful Parisian apartment, imagining what I’d be like if I lived in a Parisian apartment, the heady feeling that I’d traveled somewhere wonderful, even magical, a feeling that persisted for those fifteen minutes before the play began and continued to tease me throughout the evening.

Phase three happens as the lights go up we discover and then meet the characters, listening as their relationships unfold; we experience the delicious satisfaction of spying on others, watching their worry and relief. Though they are immersed in a private hell, we have the distance afforded by our overheated balcony seats to reflect how we might have dealt differently with the circumstances unfolding, or in Cathy’s case, how she had dealt with similar circumstances. While we engage with the play, we also feel grateful about returning to our own worlds afterwards.

Then finally, after pushing back from the banquet table, we reach the moment where we digest the play through conversation and reliving specific moments in our minds, a process that goes on for me over the next week. Everything in my quotidien life becomes colored with brushstrokes from the last play that I’ve seen. The last two weeks were really something, with Metamorphoses, Eurydice, Father Comes Home From The Wars, Parts 1, 2 & 3, and A Midsummer Night’s Dream all churning around on my canvas.

After the play, Cathy and I retired to a bench in the courtyard to dissect and reflect about The Father. We sat huddled on the bench for fifteen minutes before retrieving our cars from the garage, as she shared details of her guardianship of a loved one embedded in the confusing whirl like what we’d just witnessed on stage. We closed our car doors and made our way home.

Sunday morning, I slept late, waking finally with the beginnings of a head hungry for caffeine, then ate my breakfast and drank my tea before calling my father, as I do every Saturday or Sunday morning via FaceTime. I caught him in his familiar green chair, and we chatted companionably for twenty or thirty minutes, he showing me his wife, sitting over his shoulder on the couch. We waved at each other. They’d been to a memorial service that morning, and he was reflective on life, and aging. I told them about the play, advising them if it ever came to Washington, they should definitely see it. About twenty-five minutes in, I asked him to redirect the camera to his face, because it had drifted to a view of the ceiling. Suddenly Dad said something vague like “I feel like a curtain is coming down sometimes and I’m…being attacked.” It was such an odd statement. I said, “What do you mean, Dad?” And from behind him, his wife said, “Yes, what do you mean, Don?” And I felt like I’d been sucked back into the play through some diabolical theatrical wormhole. I felt hot again, as though the sweaty tendrils of the balcony were reaching for me. As quickly as it happened, it passed, leaving confusion in its wake.

Maybe we should hang up and you should take a nap, Dad? Are you feeling okay?

Writing now, regretfully, I know that he’ll read this and undoubtedly feel terrible that I’ve revealed an unsettling personal detail. My father has always had the best memory of anyone in the family on either side – a penchant for capturing exquisitely detailed aspects of everyone’s story, like a prospector panning for gold and holding the shimmering pieces up for us all to see. In recent years, he’s bemoaned the dulling of his recall, but in fact, I’ve always felt his memory was at least five times better than mine or either of my brothers’. This momentary lapse was so startling, disorienting as much for me as it was for him. For me, as much because it came on the heels of the evening before like that “Aha” Refrigerator moment, or what others call Fridge Logic, when, standing in the light spilling from the fridge you understand what that curious beat in Act II that rendered you confused at the time. At 88, nearly 89, it is to be expected and yet, I found myself reacting dreadfully, in the literal sense of being filled with dread. What can I do?

I’ve had a few days to mull it over and process what it means. I’ve come to the realization, in the words of my friend Cathy, not solvable by doodle polls, this, too, will be more organic.

In spite of my unsettling post-dramatic experience, I sincerely recommend a trip to the Pasadena Playhouse to see The Father.

Alfred Molina as The Father, Pasadena Playhouse

November 2, 2019

R.I.P. Susie

We lost a great human being this week, Susie Walsh, stage manager, friend, my reluctant widow pal. There have been so many heartfelt posts about what made Susie special. I’m late to the tablet. People have noted her great sense of humor, her biting but loving wit, her talents as a stage manager to anticipate and solve problems as they arose. The length and quality of her practice as a stage manager, the depth and breadth of her friendships and impact has wowed me. Susie was very private and would probably have hated the attention she’s getting, except not really, because it is so heartfelt, and irreverent, just like Susie was. Loving, subversive, disarmingly direct sometimes, she said what she meant and rarely sugar coated it unless needed to stay within professional boundaries.

I’ve known Susie for twenty-five years, but hold her dearest in my heart for her role as PSM for Endgame at the Kirk Douglas Theatre in Spring of 2016. It was my hub’s last show. Having worked so many times with Susie over the years on shows, and seeing her shows, I took enormous comfort in knowing that she’d be monitoring the halls outside of the three 89+ year old actors dressing rooms. Just making sure they were behaving. Which they were, I think, for the most part.

She let me come to a rehearsal one time upstairs so I could see how Jimmie was navigating the work as his best 89-year-old self. I’d visit Jimmie on his two show days; In the bathroom across from his dressing room, Susie would be putting on her togs for a run or bike to the beach. A runner and a complete jock, Sueis loved sports and people who loved sports and some of us who just pretended to love sports to witness her love of them and us. I went to watch a football game at her house earlier last year and feigned interest, grazing instead on the snacks, and enjoying the company of her college friends who really were invested in the game as I would never be.

Susie and I shared a secret affection for our “old men.” She and I were about eight years apart in age, and both our partners were about 30 years older than us, give or take a few years, and after all, what’s a few years when you already have 30+ years difference? Though she and Ken never married, she was loyal to him like a spouse. We shared a pretty unique set of concerns for our old men. Our stage manager, old man Venn Diagram really was fairly rare. We added a widow circle on Dec. 1, 2018.

Sure, other couples of similar ages have illness arise that they have to deal with and it is no less impactful than what we did, but ours was expected. We knew what we signed up for. It was dreaded and yet routine, and when we had lunch together after seeing her show at the Geffen about a year ago, we spent twenty minutes or so chatting about their bad knees, their home care workers. It was our dark bond, one that we shared easily like a special shared language.

When Jimmie passed away, Ken was in his home receiving carefully organized care that Susie had put together. She texted me some photos of her battle station at Ken’s.

Hey, who do I know who would appreciate my organization?

She was right, I did appreciate seeing it because the quality of her instructions was so personal, so tangible. Seeing them brought back my own diligence, and the urgency of caring for someone you love so much in decline. That was Nov. 24th, and Ken was gone by Dec. 1st, Jimmie’s birthday. We made plans in January, to go see David Sedaris on Nov. 6th this coming week at UC Irvine. It seemed so far off, and I knew we’d both need a laugh as we approached the anniversary of our shared loss. This was the perfect reflection of Susie’s sense of humor.

Susie was the fittest over-fifty person I knew, running races, inspiring us more sedentary types to exercise more. The photo above is from New Year’s eve in 2016. That morning, we took a hike in the rain and mist. At the end, I was tired, and sore for days, a fact I shared with Michele and Susie via our ongoing shared text message. We made plans for a few more hikes, each of us taking the role of organizer of the day. My go to spot was the Huntington Gardens, Michele organized a Christmas light walk in Pasadena. In each of these walks, we shared the easy comaraderie of long time colleagues and friends – the stories unfolded, with the trails. In March, 2019, it was Susie’s turn to call the walk and we’d agreed to do a hike in a spot I didn’t know about. Susie knew all the trails – we’d done several in Griffith Park and I’d seen more of Los Angeles than I dreamed existed. We followed her trustingly, sometimes discovering that the distance was more than we’d planned for, but always feeling accomplished at the end. This time, however, in the car on the way over, Susie said, casually, “I’ve got to tell you a story – I had to go to urgent care last night.” We leaned forward to listen expecting a typically light story about food poisoning, or something like that. We arrived at the spot, got out of the car and started across the parking lot. Susie was lagging a little, then she stopped and said, “Hey would it be okay if we didn’t walk? I’m having a lot of pain.” And so instead, we went to breakfast. And began to hear the ominous start of what became the beginning of her cancer odyssey. The way was unclear, and as the future unfolded, Susie met each bend in the very uneven road with her usual fierce integrity and grit and eventually resignation and grace.

In the recent weeks, when I was able to visit her, either in the hospital or the one time I was able to get away to visit her bedside, we rarely talked about death, though he was obviously in the room, shadowing the conversation, evident in the clear oxygen tubing that snaked around Susie’s ears and under her nostrils; the propulsive wheezing of the tank that spooked Maddox, her cat from sitting on the bed with her. In her living room, the room had been torqued 90 degrees from the way it liked to be, the alien hospital bed facing the door, the coffee table and couches hugging the walls, pushed aside as if to make room for the last dance of life. The photos of family, and young Ken faced her bed, her sister Katie sitting in the chair, back to the front door, her comrade in arms, as so many of Susie’s many brothers and family had done since late summer, when Susie began her chemo. I was hopelessly inept at saying what needed to be said in what turns out was the last time I saw my friend. I’m kicking myself about that and all the loss of recent weeks makes me want to rail against the gods or something. But for what?

Friday, my colleague brought me a little pink rose bush, and said how sorry he was for my loss. Thursday, the day we all lost Susie, my coach had given me an exercise to do called Roses and Thorns. As I lay in bed last night, just before I turned out the lights I documented the Good Things (Roses) vs. the Bad Things (Thorns) I marveled at the literalness of the day. Aside from literal roses, I thought about the happy reunion of Ken and Susie, Susie and her recently departed Mom, and the very happy actors, Jimmie Greene and Charlotte Rae, who now can begin rehearsals afresh with Susie monitoring the hallways of heaven.

October 16, 2019

Amsterdam and Venice – Canals, Water under the Bridges and Tiny Steps

I drove my friend Caro to the airport where I bade her goodbye as she went off on the next leg of her trip to Sidney, Australia. We’d had an amazing five days visiting; the last two, she’d accompanied me twice to campus, where she observed a production meeting Monday evening, a quick dinner in the Tutor Student Center courtyard, then a workshop on Post-Dramatic Theatre with our Israeli guest director of Amsterdam, Lilach Dekel-Avneri.

Caro lives in Venice, Italy, where I visited her and her husband, Alberto, for about five days this summer. Over those days, she patiently helped me to reconstruct my geographic synapses of a city that I had known well enough to make it home late at night intoxicated, but which thirty-three years later, greeted me as a bewildering maze of indiscriminate streets and courtyards. The canals teamed with water buses and ambulances as we strode around, crossing the arching bridges to stop at shops and galleries sampling the fruits of the Venice Biennale. One of our favorite stops had been at the Lithuanian Pavilion, where we voyeuristically drank in the performance of the actors romping on the faux beach while singing the modern opera about life’s vicissitudes in a warehouse near the Arsenale.

And we laughed. We laughed about the silly things, Caro’s bright Australian accent piercing through the afternoons and evenings. I marveled at how she’s managed to keep her youthful sense of humor and life appreciation even as she’s matured into a wise, insightful woman. When I left them in Venice, we made tentative plans for her to stop in Los Angeles on her way to Australia to see their daughter.

Between then and now, classes resumed, the seven undergraduate plays were cast and rehearsals began, designers collaborated, directors directed, and we already have closed one of the shows and opened the second. The fall has been a blur of activity, and the impending anniversary of my husband’s death has begun to rattle my cage.

The other night, the night of October 3rd, I had a dream, where Jimmie and I were traveling. We were at the airport, which was clean and modern, white shining subway tile in a hallway leading to the bathrooms. Jimmie emerged from the bathroom, standing tall, no walker or scooter, shock of neatly combed white hair. I walked to his side and we began walking, but I couldn’t keep up with him and said, “Hey, I can’t keep up with you. You’re walking too fast.” He turned, and with the twinkle in his eye I always loved, he said, “I owe it all to you.” And with that, he was gone. It was only later when reviewing some photos and some writing I’d done that I realized October 3rd had been a momentous day for us. Nearly 28 years before, it had been the day we had the call from our adoption social worker, with the news about our soon-to-be son. Also, last year, Chris had been visiting us and I’d snapped this picture at home, before our last dinner out together before Jimmie’s rapid decline. October 3rd had returned to remind me of its power and the power of our love for each other. Later that morning, poor Chris called me to say hi, and I blubbered for about ten minutes.

It was in this emotional period, when I picked Caro up at the airport on Friday afternoon, the beginning of the only weekend of the semester when I didn’t have a tech rehearsal. I marveled at how we’d somehow scheduled her visit for a pocket of my life when I could pull in my PM shingle and just play for three days. We’d opened Amsterdam just the night before, and I was giddy about getting to spend time showing her around my city.

Amsterdam has been an unfettered learning experience in mounting a non-hierarchical production. Working with Lilach has been challenging, and exciting and instructive as to how to create a play and environments through the sheer creative drive of a team. You should try to get over to USC to see it this weekend. It plays three more times this weekend. It closes Sunday 10/20.

Friday, after kidnapping Caro from the airport and driving her to Malibu, we had dinner at Gladstone’s, sitting outside, smelling the seasonal fragrance of the local fires, and watching the blood-red sun sink into the Pacific Ocean as we waited for our dessert and coffee to arrive.

There’s truth to the idea that the friends you make in your twenties are the ones you keep closest. As we looked out over the sand, I reminded Caro of the silly game we used to play at the beach at the Lido – find your physical twin. I remember my eternal body dysmorphia and how I always selected someone who looked well…. hmmm… sort of like I look today. Not as we looked then, svelte, and carefree and…twenty-two. I feel so fortunate to have managed to keep my friends close at hand.

Tonight, as I sorted through some of Jimmie’s residuals, finally made out in my name after almost a year of back and forth with the lovely folks at SAG-AFTRA, I thought about my new competencies. I’ve learned out to grieve as I need to, to pull it together when life calls for that. I know how to weigh the value of time spent with dear friends versus an extra hour of preparation for work. I’ve learned how to calendar my time to do the things that matter to me, and to keep committing to the forward actions that will make my future. I’m learning that I can be quite satisfied with a fried egg for dinner and I don’t need to beat myself up for not cooking. Or cleaning, or tidying the pile of mail before I sit down to write. When someone says they’re coming to stay, I don’t need to launch into a worry-fest about how I’ll manage house guests in the busy days of November, including November 9th, the anniversary day. Instead, I’ll think about how wonderful it will be to be surrounded by family at that time, fantasize that they might have dinner on the table when I come home, then proceed to take it one day at a time rather than drifting into a miasma of martyrdom.

I’ve spoken to several students this week who suffer from depression, anxiety and OCD. And the cold or the flu that’s going around relentlessly. I want to tell them it will be okay. Emotions are emotions. They won’t kill you. You have the power to control them. And even if you can’t for a moment, this too shall pass. That’s what they made Kleenex for. Lord knows I’ve developed a competency with Kleenex this year.

This fall, I have an amazing class of GESM 111G students. We’re learning how to read plays together, how to look at plays, how to sit and experience each dramatic outing and then come together and share our more and less favorite parts. They’re so enthusiastic and willing to share. I tortured them with an exercise this week. I’d had them do the Creative Autobiography from Twyla Tharp’s terrific book, The Creative Habit weeks ago, then carried around their little bits of heart in my bag for weeks until I finally read them. Each of them shared their creative successes and failures and aspirations with me. Across the board they all want to make a unique contribution in their field that helps people. So I thought that was worthy of some torture. I had them write what they thought that unique thing might look like, and after several iterations of sharing their ideas with each other in small groups, I wrote on the board what the tiny steps that they could take to get moving toward the goal would be. (Can you tell I’m working with a life coach and trying to emulate her? Good guess.)

Amsterdam, Venice, friendship, creativity, supporting each other. These are the tiny steps that make a life. In the end, it’s all water under the bridge.

August 14, 2019

Stage Managers and Scary Things

There’ve been several times as a stage manager, when I received invitations to do jobs that scared me. Scared me for different reasons, but mostly due to my normal fear of the unknown. And yet every job is unknown, because stage management is virtually 100% freelance gigs. Sometimes, though you are still working contract to contract, you get lucky enough to have an artistic home, as I did for several years several times in Los Angeles over the twenty-five years that I freelanced.

I spent four years at the Geffen Playhouse and the same at Center Theatre Group. I grew to love each of the staffs of those theaters, as well as the many actors, directors and designers with whom I collaborated on dozens of shows.

I’ll always associate becoming a mother with the Los Angeles Theatre Center, where I was stage managing Reza Abdoh’s Bogeyman, when the call came from our social worker at the Department of Children’s Services that they had a toddler for us to fost/adopt. My colleagues, led by the ASM, Sandy Cleary, hosted the baby shower. Even considering the complexity of the show I was doing at the time, suddenly becoming a mother of a two year old used many more brain cells and was more physically challenging.

Four years at the Pasadena Playhouse. My crew and I grew so accustomed to being at the theatre, so at home there that once we walked to the nearby Target on a two show day and bought Little Debbie’s cakes, and Twinkies, then retired to the office during the dinner break and practically made ourselves sick and giddy and ridiculous there on the floor between the stained couch and the desk. I’ll always associate Tin Pan Alley Rag with losing my Mom. In the stage management office off upstage right, I took a call one night just before half-hour from Jimmie, who was holding down the caretaker fort with my mom as she progressed through the final weeks of her life. Metastatic lung cancer, proof of which manifested itself in several very surreal episodes.

Hi, Els, can you talk? Your mother would like to speak with you. (some rustling as the phone is passed to her)
Hello, Elsbeth? (breathing heavily, and sounding frantic)
Yes, hi, Mom, how are you? What’s going on?
Elsbeth! You need to call the UN immediately. They need you to negotiate. I just heard it on McNeill-Lehrer.
Well, uh, Mom, I’m pretty sure the UN will be fine without my negotiating skills… Besides, we’re at half hour.

What a brat I was.

Stage/Production Managers have extraordinary skills of compartmentalization. It’s what made it possible for me last year to organize the home care for my husband, then go to work and focus on details that the job demanded. The occupational hazard of Stage Management is megalomania – we begin to believe that we’re the only one who can do the job. I only have one regret about last fall. That I didn’t walk away from work to be at home before it became acutely necessary for me to be there. Take away this.

Yes, the show will go on, but it can go on without you when your life calls you urgently to live it.

Opening night, she came to the theatre to watch the play with Jimmie, and afterwards, at the opening night party, clad in a new Missoni floor length gown, she mingled alongside me, with the cast and crew. I introduced her to the actor who played the lead character, Ira Gershwin. It was a day or two after the fashion designer Gianni Versace had been murdered in Florida. Ever the reporter, Mom looked at my lead actor, turned to me and hissed, “He’s the one who killed Versace!”

No, Mom, I promise you, it wasn’t David. He’s been in tech and dress rehearsals for more than a week. He wouldn’t have had time to get back and forth to Florida between rehearsals.

I am fortunate to have spent my entire life (so far) working in the theatre – a life in the theatre is a life well spent. I’ve had the opportunity to share important life markers: falling in love, marriage, parenthood, illness and even death with other theatre artists who understood how to work and live with intimacy, depth and candor. All while doing work on stage which illuminates many of those same life markers.

Sometimes a job will come along that shakes you out of your artistic home. Calls upon you to maybe move household, or take a big step back or a huge step forward. An invitation to go to Sicily to Stage Manage for Robert Wilson; or to go to Montana for the summer with the Alpine Theatre Project; or to apply for the job as Production Manager at USC School of Theatre.

Your inner scaredy-cat says

“What? Go to Italy and work with international artists? My language skills aren’t strong enough!”

“What? Move to Montana for the summer? What if my family doesn’t want to come?”

“What? Production Manage? I don’t know how to do that?”

But your strong center and your hunger for new and interesting collaborations calms down the fearful voice and says, “You lived for a year in Italy and will regain fluency and for crying out loud, it’s Robert Wilson!”

“Maybe that’s just what you need to go to Montana to shake things up. Plus you can hike and get out of the city. Your family can come join you there for vacation.”

Or maybe you are just lucky enough, as I have been, to have friends who encourage you to try something new when you are at an emotional or professional crossroads. Like the Production Management opportunity. “Els, you’ll know how to do it. It’s just like stage management but on steroids.”

And so you take the steps forward to meet the challenge. To do the work. To build the life.

I’ve shared that the loss of my husband last fall was a devastating blow. Even now, nine months later, I still tear up and some days feel unmoored, untethered from the very life we had worked so hard to build. How fortunate I am to have a strong artistic family and friends that have gathered around me in my time of need.

I haven’t felt like writing lately. I’ve been hunkered down in my post apocalyptic emotional bunker, occasionally poking my head up like those adorable prairie dogs at the zoo. I’m on watch for the next tragedy. Grief is distracting. More distracting than anything I’ve ever experienced.

In stage management a project starts and it ends. There are frequently good days and bad day no matter how illustrious a project it is. There’s a thing nothing short of magic that happens in a rehearsal room as the alchemy of playwright, director and actors is forged through the vehicle of a new and exciting script. Life’s the same as that. Except it’s a devised work. No script. You’re the producer who brings all the facets together to create your own magical alchemy. If you take the chances, the risks, to step outside the normal boundaries of your existence, you meet new people, form new experiences, participate in new adventures. And yes, it’s frequently scary, but usually okay or way better than okay in the end.

All the good days, all the bad, the pain, the heartache, the joy you feel through every phase of your life makes you who you are. You are strong and vibrant and capable. You may not be able to write about something important every day, but if you pay attention to the call, you may find pop out of your prairie hole and find something to keep you entertained and alive.

May 19, 2019

Memories, Manifestos and Mariachis

This weekend marked the final productions of the school year, and the launching of our three MFA Dramatic Writing 2019 graduates, Mariana Carreno-King, Aja Houston, and Gideon Wabvuta via the New Works Festival YIII at the Pasadena Playhouse.

Cast of The Red Gene by Mariana Carreno-King
Cast of The Color of Blood by Gideon Wabvuta
Cast of The Journey to Alice by Aja Houston

Three powerful plays, dare I say personal manifestos about dystopias: political, mental and war-related, all with plot twists that took your breath away. The festival is a collaboration between The Pasadena Playhouse and USC School of Dramatic Arts. It features professional actors and directors and student stage managers, who get to practice what they’ve learned on campus in a professional venue. Each of the plays perform once, witnessed by an enthusiastic audience, then critiqued by a panel of responders (dramaturges), several local professionals, and one national responder, this year Celise Kalke, who came from Atlanta, Georgia’s Synchronicity Theatre to share her feedback with the three authors. The local responders were Oanh Nyugen, Artistic Director of The Chance Theatre, and Brian Nelson, television and feature writer, Co-Producer and Writer of Netflix’s Altered Carbon.

The directors are equally prestigious, Elisa Bocanegra (Hero Theatre), Jon Lawrence Rivera (Playwright’s Arena) and SDA Associate Professor and Director of Diversity and Inclusion, Anita Dashiell-Sparks.

In years past, the festival has been presented in the intimate Carrie Hamilton Theatre, but due to some scheduling challenges, was moved to the main stage, where the three plays were showcased beautifully against the 1925 proscenium arch erected through the fundraising efforts of theatre impresario Gilmor Brown. Sitting in the house for the first afternoon’s rehearsals catapulted me back to the early 90s when I was a stage manager at the Playhouse. Standing in the green room after nearly twenty years away had a similarly breath stopping effect to the plays going on above me. One of the students who was there this week as our festival’s ASM came up to me on the final night and showed me an antique looking picture she had taken on her phone. I stood looking at the screen, mumbling, “What am I looking at here?” , while Maya practically quivered next to me waiting for it to hit me. Aah. Lower right corner, kneeling on one knee, a thirty-seven year old Els with the cast of Equus.

Many dear friends in this photo arresting a moment in time so long ago. Photographer Maya Concepcion’s silhouette is visible in the reflection.

I learned so much on that show twenty-two years ago. I left the show in the last weeks of the run to assist my mother with her radiation treatments, by driving her to the hospital daily and caring for her for about a month. She had metastatic lung cancer. I was leaving the production in the capable hands of my assistant stage manager, Dan Munson. I remember the difficult conversations with the director questioning my professionalism. It was the first time I stepped away from my job for compelling personal reasons and I think I felt worse about the excision of myself from my work than I did about my mother. The minute I got there I knew I’d made the right decision, of course. When we’re young-ish, sometimes it feels like the show must go on and you’re the only one who can make it so. I’m here to tell you that is definitely not the case. If you’ve done your job well, you are replaceable. And if you haven’t, you are even more so.

The second thing I learned on that show, which featured nudity on stage, was that not all fan mail is welcome. The young man, who played Alan Strang, the boy, received a particularly horrible letter which he opened at or after half hour, and which understandably enraged him. Thinking back on it, I’m not sure what the solution was, because you can’t not deliver someone their mail, but my timing was poorly executed. And fortunately, the fire in the wastebasket was easily extinguished.

Memory is a tricky beast. As I stood in the Green Room and did the pano-shot above of the basement, so many memories flooded into my consciousness. In 1992, when Jimmie was called upon to step into the role of Henry Saunders in Lend Me A Tenor after the opening, due to an injury of an actor, Jimmie and I did our parental pass off of our three-year old son Chris, who came with Jimmie to the theatre in the evening for the show, and I was just finishing up with rehearsals for On Borrowed Time, upstairs in the then third floor rehearsal room. We exchanged hugs and child also in that dressing room. On Borrowed Time was also the first show I did at the Playhouse, and one where our dog, Molly Dogg was featured on stage. Among other things, I learned about how to and not to deal with an earthquake during the run, which makes me particularly attuned to instructions that Stage Managers have about procedures in the case of emergencies.

I will also always associate that corner dressing room with Bea Arthur, her rough directness and sweet affection for her cast mates in After Play in November of 1997, immediately following my mother’s death. There was something soothing about working on that play at that time. The long table hosted so many Saturday afternoon dinners, provided to the casts and crews by the Friends of the Pasadena Playhouse, the volunteer army of playhouse devotees who staff the front of house and provide this important service, too.

So, you’re wondering, how do the Mariachis fit in? They were purely celebratory, serenading us at the opening responder’s dinner for the MFA Dramatic Writing New Works Festival. As the playwrights broke chips and salsa and guacamole with the responders, the friends and family and faculty cheered the process at the adjacent table, and raised our glasses to the launch of their hopefully long and memory-filled careers.

Directors Elisa Bocanegra, Anita Dashiell-Sparks with Oliver Mayer and Marlene Forte
Family and Friends – Director of the Program Velina Hasu-Houston is mid table right side
Merry Mariachis
L. to R. Anita Dashiell-Sparks, Brian Nelson, Oahn Nyugen, Celise Kalke, Mariana Carreno-King, Aja Houston, Gideon Wabvuta

April 14, 2019April 14, 2019

Lessons in Narcissism and Recovery

An American living in our times would be forgiven for diverting their gaze from narcissism as an odious and rampant practice of the higher reaches of our society. I remember one of my husband’s favorite stories was from when he’d shot the film Doc in Almeria, Spain back in 1971. He’d been on location for several weeks, and after recounting seeing someone kick a dog in the street, was told “It starts at the top with Franco.”

Yeah, well, I think we’ve beat the Spaniards on this one. So clear is the directive sent from the upper reaches of our government that the expected trickle down effect has infiltrated every corner of our society, Ponzi schemes, to #MeToo to the latest scandal in college admissions. All are fundamentally based in the tenet that my needs/truth/reality overrides yours or anyone else’s.

I’m here to tell you that sometimes narcissism is healthy if exercised in a confined timeframe. I can’t yet tell you the acceptable outer boundaries of healthy narcissism, because I haven’t yet navigated them, but some examples are:

Around the birth of one’s child
Around the care of loved ones
Around the death of one’s partner

There may be other examples of appropriately prescriptive narcissism. My direct observations have to do with all three bullet points above. Not sure what our Franco-equivalent in the White House would say are the rationalizations for his extreme narcissism, but I’m pretty sure they are none of the above. But then, as a (hopefully temporary) narcissist, no one’s pain is worse than mine, right?

Last Sunday, I had the pleasure of seeing The Miraculous Journey of Edward Tulane at the 24th Street Theatre, here in South Los Angeles. Running through May 19th, based on the young adult book by Kate DiCamillo, the play recounts the travails of a uniquely fashioned charmingly narcissistic china rabbit. Edward’s miraculous journey unfolds through his travels and travails, and his awakening from narcissist to empathetic being, able to learn to love again after his own loss. The 24th Street Theatre does consistently beautiful work with minimal and very theatrical elements, and again, here they don’t disappoint.

Director Debbie Devine has guided her cast of four, accompanied on a piano throughout by Bradley Brough through the intricacies of this rabbit’s tale (sorry, couldn’t resist). Funny, moving, tear jerking and ultimately satisfying, the afternoon unfolded with a welcoming curtain speech by Co-Artistic Director Jay McAdams, contextualizing this theatre’s imprimatur on the play (first production utilizing spanish supertitles, created for the production, as well as the consciously simple aesthetic which the theatre embraces). From the moment I entered the lobby of the theatre, I found my visit one of inclusion. Awkward in my singleness these days, I’m challenged in going out to see something on my own, particularly on a Sunday afternoon. It was opening weekend of the play, and the lobby was filled with 24th Street Theatre family members, board members, critics, adults, children, neighborhood folks. The step and repeat with a stool and two bunches of carrots was heavily utilized. I enjoyed seeing families posing with the carrots and huge smiles on their faces.

(I’m sorry, Jay and Debbie, issuing a spoiler alert.) If you are in the LA area, please come see this play. If you aren’t, you can benefit from a reading of this magical book.

Like Edward, I’ve been going through my own miraculous journey since my husband’s death in November. In the early phases of his rabbit destiny, Edward is cocooned in the loving embrace of his young girl owner Abilene Tulane. He wants for nothing, so embraced and supported is he. A bunny of privilege, his clothing is stylish, his position in the household secure. Then comes his loss, from which it appears he may never recover. His life pretty much goes to hell. I recognize, wear these phases of bunny privilege, then loss. The life going to hell part is less applicable, unless you describe sessions of unprovoked tears, increased impatience with things and people and a general weariness and disinterest in participating as hell. I don’t afford myself that luxury. I know that it is a process, and as hard processes go, they are not hell. They are opportunities for growth and improvement and learning.

The tears, weariness and disinterest describe the immediate aftermath of a loss, even if you are lucky as I have been, to have the consistent support of family and friends. Eventually, after the public grief cycle has “ended,” after the memorial, the funeral, the life celebration, the next phase begins. It is one of solitude with a lot of acting involved. To sustain the Edward Tulane metaphor, this might be construed as the “scarecrow” phase. Utilized as a deterrent to others, surrounded by shiny objects, the grieving widow/er is still out there in the field, showing themselves to be fierce, smiling, but feeling emotionally empty and suspended. This might be why I chose to purchase the bracelets and distribute them to my grieving friends. Upon receipt, their thank yous were heart-felt, but also tinged with a recognizable sadness and fraught with questions I don’t have the answers for.

How do you keep f&*king going?

I can keep f&*king going, but why should I?

And for me, the moment one night 34 years into my sobriety, five months into my solitude, this week, I stood in front of my cabinet in the kitchen and looked at a corked bottle of red wine left over from one of my recent visits by friends, thinking to myself, “well, no one would even know if I had a glass of red wine right now.” I promptly uncorked the bottle and poured the remaining wine down the sink. It really scared me.

The one reassuring element of this scarecrow phase is that I find myself surrounded by other scarecrows. I’m not alone in the field. Nor are any of us. I want you to hear that.

None of us is doing this human thing alone.

I’m reminded of that every day, yesterday in the hallway in the DRC as I greeted a colleague who has been on leave for several months. We clung to each other sobbing amidst the coming and going of our colleagues. In her I recognized her challenges and loss; in me, she recognized my loss and challenges.

If you were to read my bed-side table stack now, you’d be worried but really, I’m in a research phase, to prepare me for the work ahead. Because of my loss, my bunny tale, if you will, people have been reaching out for support during their own challenges. I want to say when they do, “I don’t know any more about this than you do!” And I’m certainly not an authority on caregiving, death, or anything related to human loss. And yet, I do have the capacity to listen and hear and try to help. In my own limited scarecrow capacity. As do you. And certainly my friends do.

Emotional Check in this morning with my Pals via Skype – three different time zones. So sustaining.

From now through May 19th, if you live in Los Angeles, you can and should see The Miraculous Journey of Edward Tulane at the 23rd Street Theatre. It will help you in your recovery. Aren’t we all in recovery from Narcissism?

March 2, 2019March 2, 2019

Between the Bubble Machine and the Sobbing

The other morning I dashed from the gym to my eye doctor’s office to pick up my new glasses, you remember, the Gwen Stefani frames? This pickup happened to coincide with the arrival the night before of some new togs I’d ordered on sale at Macy’s. As I drove home in the gestating traffic from Burbank to DTLA at about 9:00AM, I pictured my stylish new self cutting quite the swath through the morning air as I strode into my office.

I arrived home, pretty rank by this time, having gone sweaty into the car in my down jacket. Due to the atypical inclement weather in L.A., I’ve had it on for almost three weeks without respite or laundering. Ew, you’re saying. Peeling off the offending jacket, I greeted my cleaning lady, who was off in the bedroom busily stripping the bed of it’s sheets. As I called her name, I saw her coming toward me, face splotchy, guiltily swiping the tears from her cheeks. We embraced; I tried to console her, she tried to recover, but we both knew I’d caught her grieving. And me, temporarily dry-eyed, looking toward my day clad in my new persona, the classic “growth vs. grieving” moment.

I went off to work and I guess the glasses were a lot more stylish in my mind than they are in person – no one noticed them. Granted, the decor is on the inside of the frames, with only a glint of red visible at the temples.

Do you like my Gwen Stefani glasses?

To which the universal response was ‘meh.’

Wednesday, I attended a Visions and Voices event, Enchanting Aging: Inspiring Awe and Meaning in Late Life. Writer and MacArthur Award honoree, Anne Basting, came to share her research about the intersection of health care and culture in an appropriately fashioned joint event between the School of Dramatic Arts and Gerontology. She began her lecture by defining Awe and Wonder, and asking us all to turn on our cell phones and text someone the following question:

What gives you a feeling of awe and wonder?

She instructed us to text the question to someone we knew well and then mute our phones. She promised that later we’d be able to share the responses.

Predictably, Chris’ response was not “a walk in the woods or the snow carpeting the woods” but merely, “What?” And then a rude quip about something completely unrelated to awe or wonder followed by a smiley emoticon, tears pouring down its face. What can I say? Maybe we didn’t raise an awe-er, but he does have a fair amount of wonder-ing going on most of the time. And a great sense of humor.

Dr. Basting’s recounted her work (her website is www.timeslips.org) in an illustrated presentation, the bold splashes of colorful humanity on Gerontology’s fancy LED display. She brings the rigor of her scientific exploration into fierce and joyous communion with her artistic practice, much of it with the Sojourn Theatre Company. There were more than a few moments of awe and wonder experienced by Wednesday’s audience. She asks compelling questions: How can we deepen the cultural and human experience of people in long term care (both residents and providers) by creating collaborative and creative spaces to share that humanity? It can be done, and the results are inspiring.

Her talk described how awe can minimize our egos and wonder can maximize our search for meaning. She had a dandy diagram which I unfortunately didn’t capture to illustrate this. I bought both her books and look forward to learning more.

One of the stories she shared grabbed my attention. She detailed a pre-production walk-through of one of the nursing homes with the director and production designer for their upcoming production of the I Won’t Grow Up project in three care facilities in Kentucky. As they walked they indicated where they would place the bubble machine, then came around the corner to discover a couple in their 60’s sobbing in each others arms. Forgive me while I mangle exactly what she said, but what I heard was that in these creative care settings, where we seek to buoy people’s emotions with a shared uplifting experience (metaphorically the bubble machine), we also need to remember and respect the underlying grief and profound loss that also resides here. Don’t all of us reside squarely between the bubble machine and the sobbing?

In the Q & A period following Dr. Basting’s talk, a student behind me raised her hand and shared that she’d recently lost her grandmother. She became emotional, and in the way that we recent grievers tend to do, laughed through her tears and apologized that she “wasn’t over it yet.” Her admission made me tear up more from the obvious expectation she was inadequate in her grieving, the idea that she should be over it. I wanted to reach back and tap her hand and let her know we were with her and didn’t expect that she recover on some societal timeline.

My dear friend Susan sent me the most beautiful and apt poem that I’ve shared with some profligacy already via text message to my Widow(er) Club. Delivered within a Sermon written in 1910 by Henry Scott Holland on the occasion of the death of King Edward VII, it is entitled Death Is Nothing At All.

Death is nothing at all.
It does not count.
I have only slipped away into the next room.
Nothing has happened.

Everything remains exactly as it was.
I am I, and you are you,
and the old life that we lived so fondly together is untouched, unchanged.
Whatever we were to each other, that we are still.

Call me by the old familiar name.
Speak of me in the easy way which you always used.
Put no difference into your tone.
Wear no forced air of solemnity or sorrow.

Laugh as we always laughed at the little jokes that we enjoyed together.
Play, smile, think of me, pray for me.
Let my name be ever the household word that it always was.
Let it be spoken without an effort, without the ghost of a shadow upon it.

Life means all that it ever meant.
It is the same as it ever was.
There is absolute and unbroken continuity.
What is this death but a negligible accident?

Why should I be out of mind because I am out of sight?
I am but waiting for you, for an interval,
somewhere very near,
just round the corner.

All is well.
Nothing is hurt; nothing is lost.
One brief moment and all will be as it was before.
How we shall laugh at the trouble of parting when we meet again!

Source: https://www.familyfriendpoems.com/poem/death-is-nothing-at-all-by-henry-scott-holland

What the poem gives us permission to do is carry on with the current life, secure in the knowledge that our loved ones are all around us. This is profoundly comforting.

And so I’m bubbling on with my new life. This week was full of contrasts. I shared an intimate dinner at the Pacific Dining Car with Hal Holbrook and his companions, Joyce and Juan. Hal is such a national treasure, such a passionate practitioner of the theatre, and I feel so fortunate to spend time with him, much of which is spent reflecting on the past and our Jimmie.

The next night, I had my first solo dining out experience at Fred 62, a diner on Vermont. Thursday, I’d witnessed the beautiful and collaborative care that Hal cherishes while enjoying a beautiful piece of halibut on a succotash of delicate vegetables. Last night, I felt my own strength and fearlessness in my new solo role while eating a crunchy grilled cheese sandwich with a cup of warm tomato soup. Then I wandered down the street to the Skylight Theatre to see Boni Alvarez’ America Adjacent. The on stage scenario he reveals is not illustrative of any outlined by Dr. Anne Basting, but Boni’s play is a full throated celebration of his heritage, and all of our yearning for the elusive American Dream.

Somewhere between the bubble machine and the sobbing, perhaps we’ll find it.

November 26, 2018

The Grieving – Early Days

The second weekend was over, and behind me were two lovely lunches with caring friends, Saturday at Fundamentals with Ellen, my neighbor and former spin friend from YAS, and Sunday, at Vespaio, with Rob, my fellow-theatre buddy which was followed by a visit to MOCA to see the exhibit, One Day at A Time, Termite Art.

This exhibit was particularly useful now. It featured the work of Artist and Cinema Professor Manny Farber, who created the term“Termite Art” to describe art that isn’t an identifiable stylistic school focusing instead on the quotidian objects that shape our perceptions of our lives. It reminded me of the 17^thcentury Memento Mori paintings, not at all stylistically, but metaphorically.

Farber tips his 21st Century table tops up so they become flattened surfaces, but persists with three dimensionality in his objects. They aren’t as clear as the painting below in their meaning, but function as a visual blog of sorts, and not specifically about “live now because tomorrow we die” messages, but live now because we live now as unique and creative individuals.

https://en.wikipedia.org/wiki/Memento_mori#/media/File:StillLifeWithASkull.jpg

This was an impactful and timely message for me to hear now, only a few days after the death of my husband.

“Farber championed art that was committed to observation, deep attention, and the unique temporalities of the quotidian. In his words, the production of termite art is a process of “journeying in which the artist seems to be ingesting both the material of his art and the outside world through horizontal coverage.”

https://www.moca.org/exhibition/one-day-at-a-time-manny-farber-and-termite-art

Last Monday’s “unique temporalities of the quotidien” was the disposal of dead flowers. I had received so many beautiful floral arrangements, and they had begun to leer grotesquely at me, challenging me to disassemble them and rearrange the leftover flowers into something that will last a few more days.

Emotionally this is what I’m doing as well. Reassembling my heart and life into something that will last a few more days, weeks, months, years, decades, hopefully.

The task mundane, the smell redolent, I trimmed away the lilies, their faded flowers cascading into the sink, next the roses, buying more time with their sympathies and the beauty of their arrangements.

While I did this task, I wondered what my “tabletop” would look like now. Scattered documents from the Neptune Society, SAG-AFTRA, MisterRodgers USPS forever stamps and thank-you-for-your-thoughtfulness cards, an appointment card for Jimmie’s podiatrist whom I haven’t yet called to give the news, my checkbook, a typed list I’ve ironically entitled “The Hereafter List”on the table, my South African ceramic mug filled with chilling tea and milk. No dead birds, a theme of Manny Farber’s table tops, but that day, I wore the hummingbird earrings thoughtfully sent to me by my stepmother last Christmas, a talisman of our shared enthusiasm.

Over the past two weeks, I’ve heard from the many widows and widowers in my life, and they may not have any idea of how greedily I’ve drunk in their words and metaphors for their journeys.

Somedays you are in the boat, and somedays you are under the boat. I’ve found that the less you resist, the quicker the wave swells pass.

I’m sure you have many people, family and friends to be with you at this difficult time. The tough time comes when they all go back to their separate lives, and you realize your best friend is gone.

I know this is inevitable. I have been on the giving side of that unintentional abandonment. I know it will suck, but her words are true and it helps to prepare for that moment.

Remember that you are alive. He is gone, but you are still alive.

Each of them has confessed: “I still talk to _______ every day.”

I’ve been timid to speak to Jimmie, feeling foolish to hear the shaky cadence of my voice in the quietude of our once shared home. Sitting on the couch yesterday, I looked over to where Jimmie used to sit from my chaise end of the couch and said, “This sucks, you know.”

So far, it is a one-way conversation, but that’s to be expected. He too, is busy getting his bearings in the new world where he finds himself. I’m sure there are happy reunions going on there, with his dear friends Jason and Steve, his brother Jack and sister Claire. All this spoken in the confusing maelstrom of my mind where I remind myself I don’t believe in the afterlife.

I’ve begun re-reading Joan Didion’s “The Year of MagicalThinking,” a powerful book which I finally read last year because while I had thought I’d save it until after Jimmie was gone, I went on a Joan Didion bender and got to that book and thought to myself, “Jimmie is never going to die and I really want to read this book.” In the mind of a grieving widow, this equates into “by reading Joan Didion’s book I killed my husband.” I know how irrational it sounds and I don’t at all believe it to be true but I share these inner workings because this process is not unique to me. Millions of people lose loved ones every year. According to Quora, the estimate was 6, 775 per day in the U.S. alone.

Today I returned to work. Wearing a full-fledged head cold. One of my colleagues stopped by at 9:00AM with two boxes of Krispy Kreme donuts, the holiday version, and the classic. Not that it matters but you may be proud to know that I ate the top left one and then we cycled them down to the shop classroom where they were happily ingested. I’m not sure what the message is when you get two dozen donuts where a box of 6 would have sufficed, but the arrival of the donuts was absolutely a joyous way to start a tough day. So, thanks PGA for reminding me I’m still alive.

The work right now is riding the grief like the wild bronco it is. Arranging my new table top is work for the future, but am inspired by Manny Farber’s joyously colored chaotic and richly decorated surfaces. I am also inspired by the way we humans make our way through the headwaters of grief and resurface anew, emotions perhaps rough, but memories intact. And one makes new memories, witnessed below.

November 9, 2018

After the Fall

Arthur Miller’s After the Fall, a production of the Lincoln Center Repertory company, directed by Elia Kazan, and produced by Robert Whitehead and Elia Kazan, opened in January 1964 at the Anta Theatre in Washington Square.

Opened in rep with “Marco Millions” and “But For Whom Charlie” then continued into next season and played in rep with “The Changeling”; “Incident at Vichy”; and ‘Tartuffe”.

Jimmie played The Clergyman in the production, which also starred Jason Robards, Barbara Loden, Faye Dunaway, Hal Holbrook and Mariclare Costello among other actor luminaries.

After the Fall has taken on new resonance, as our lives have been shaped by a single event. Our short-lived period of pain-free peace was shattered by the nocturnal victory of gravity over balance at home one night in the middle of October.

Our dear friend Susan was visiting us from South Africa, a trip booked in a previous period of medical panic, and we were basking in the final moments of her visit, the night before her departure. We were enjoying the end of the Major League Baseball playoffs, soon to gift us with a fourth World Series title in 15 years for our Boston Red Sox. Susan’s May visit was punctuated with an ill-timed trip to the ER, and this time, I’d made Jimmie promise we wouldn’t go again while Susan was here. Little did I think I’d be tempting fate with such a promise. The final night of her October visit, Jimmie tumbled, his Lear-like cry and the resultant clatter of his walker against the mirrored closet doors roused me from the murky depths of a deeply restorative sleep.

I rushed to his side, tripping over the too-heavy-for-LA-comforter which lurks on the floor at the foot of our bed. The fall was traumatic; he was shaken, but I checked him over and finding nothing broken, returned him to bed. The next day, we went to the ER. No fractures, thankfully. This photo we took in the hallway on our way to the ER as Susan waited at the apartment for her ride to the airport.After that foray to the ER, we returned home, and spent about 10 painful days there until last Thursday when his visiting niece Martha and I realized we couldn’t manage his care at home. We called 911 and two strong EMTs came and lifted Jimmie onto the chair gurney.

Martha and I followed in the car, and I caught up with him in the third floor ER. After a CT scan, confirming no fracture, he was admitted to hospital overnight.

I never thought this day would happen. I’d always sworn that whatever happened, Jimmie would stay at home. But when your husband’s a dead weight in your arms, it’s a stark reminder that we don’t always control decisions about our circumstances, especially as we age.

Pain meds are powerful and effective. When administered regularly, they have stultifying effects which exacerbate the pain even more. Pain causes lack of hunger. The combination of lack of hunger and pain meds causes a glassy-eyed ghostly non-presence which descended quickly and in our case, irrevocably.

I watched as my normally impish and flirtatious husband become a vision of St. Therese, gazing up in beatific gape-mouthed wonder. I’ve had a lot of time to think in the past days. These are a few of the things I’ve been thinking about.

I’ve worked hard all my life in my job, very often at the sacrifice of cultivating social relationships. I think it’s probably fairly common in an industry where “I can’t. I have rehearsal.” is a slogan on T-shirts. While I love the people I work with, I wouldn’t necessarily call on them to be with me at my husband’s bedside. That’s not the nature of our friendship. When the social worker said, “this is the time you need to call on your friends,” I realized that our son is the only one I can really talk to about this.*

*Shortly after writing this, my phone rang and it was a dear colleague from school “just checking in on me.” It was so meaningful and amazing that such a brief conversation could have such a restorative impact. Since then, I have had numerous outpourings of support which have cheered us on.

No one prepares you for making tough decisions like these by yourself without your loved one’s input. An Advanced Health Care Directive and Medical Power of Attorney are critical to having control over your circumstances. After a day or two in the hospital, Jimmie wasn’t able to answer a question about what his level of pain was – how could he endorse my decision to take him home and cease medical intervention? These are conversations best entertained in the flush of good health during the early part of your life and marriage. Or the middle part. Tough talks. Gotta do it.

So many people have told me that I have to care for myself in order to care for him. Fighting away the doubt and guilt, the third night of his hospitalization, I succumbed and went home to sleep on his side of our bed, lolling drunkenly in his scent like a dog in roadkill. The next morning, Tuesday, I took time to vote before coming back to the hospital. They were right, I felt more like myself, less victimized by grief and loss of control.

Now, about 20 days After the Fall, we sit patiently by his bedside, now home in the comfort of our shared world, Chris by my side, his little dog Cupid affording us all pet therapy.

The Hospital Stay Play (With apologies to actual playwrights)

Characters
Jimbo – our hero

Elsa – his wife

Lawrence – Trans Male Night Registered Nurse (Nights 1 and 2)

Emily – Sturdy Pacific Islander Certified Nursing Assistant (Nights 1 and 2 and Days 2 and 3 – they never let her leave)

Delauney – The intravenous gold that allows him to sleep in spurts of 2-3 hours

Ms. Contina – the pill that evens out the pain during the day and night.

Place: Limbo, AKA a room on the fifth floor of Good Sam Hospital

Time: Now, then, whenever, an eternity of time that easily spans hours, days, weeks

Set pieces – two medieval torture racks – one with electric controls to raise and lower the back and feet, the other, a decidedly analog roll out hospital cot. A rolling table that barely fits under the bed and rolls up to within 6″ of the patient’s chest, causes anxiety and revulsion.

Scene 1 – \Transitioning from the ER. Jimbo and Elsa enter, Jimbo on a gurney, Elsa, as usual, carrying too much for the given situation. Jimbo moans in pain. Elsa hovers, holding his hand as Lawrence and Emily get him situated. Emily takes his blood pressure. Lawrence nods.

Lawrence: Jimbo, what is your pain level on a scale of 0-10?

Jimbo’s eyes dart left and right, pupils almost too tiny to see, his hand reaching for a hand to clutch. Elsa provides it. Minutes pass, Lawrence waiting patiently next to the bedstead, holding Delauney and a saline chaser in his hand.

Lawrence: (after several moments, giving him the benefit of the doubt) Jimbo, are you still thinking about what pain level you are at?

Jimbo: (silence. Mews in pain. Soon Delauney saunters into the bloodstream and we enter the Beckett zone. Jimbo’s head lolls back.)

(Hours pass. Elsa climbs onto the second torture rack and falls into fitful sleep. Jimbo’s passed out, sprawled on the pillows on the electrical torture rack.)

(Suddenly)

Jimbo: AAAAAAAAAHHHHHHHH!

Els: (Springing off the rolling rack, wrenching her back) What is it?

Jimbo: Pain! (Els pushes the call button on his rack. Lawrence enters. Unawake, Elsa narrates what Lawrence is doing. Her lack of sleep and general gender confusion cause her to use the wrong pronouns and clumsily, finally, no pronouns at all.)

Elsa: She’s trying to get you positioned, Jimbo! ….helping you to be out of pain.

(once Lawrence has left the room)

Jimbo: Are we alone?

Elsa: Yes

Jimbo: Is she mad at me?

Elsa: Sorry, she is a he, and no he’s not mad at you. (a minute passes)

Jimbo: Is she mad at me?

Elsa: (firmly) No, he’s not mad at you. (a minute passes, and the hellish exchange continues three more times.

(Later)

Jimbo: (genuinely contritely) I’m sorry I can’t go to the theatre tonight with you.

Elsa: We’re not going to the theatre tonight, Jimbo.

Jimbo: Can they hear my voice on stage?

Elsa: Jimbo, we’re in the hospital. We’re not in the theatre.

Jimbo: But can they hear me on stage? Are we in the wings?

Curtain

More days have passed. In a fluke of the world showing it’s perfectly kind underbelly of good Karma, we were sent a caregiver at night who turned out to be a theatre buff, and kept saying loudly by Jimmie’s bedside, “He’s a National Treasure!”

We are still in the wings. To a transitional phase that happened so quickly, so unexpectedly. Only two weeks ago we were back to a pain-free life together. Treasure the moments you have. Be present. Plan ahead so you don’t ever have to plan under duress. (She said, sounding like the logistician/stage manager she is.)

September 30, 2018

Phantom Threads

Though you’d never know it from my silence, this has been an event filled week. After finishing the scones, yes, all the scones, last Thursday, I escorted Jimmie to his surgical procedure and home the same day, quite a feat for the 91-nearly-92-set, and we settled into the recovery period over the weekend.

Though the surgery had gone well, the dreaded C words still prevail – cancer in the biopsy, and catheter in the “leg” as Jimmie said to his sister Kate when we called her this weekend to wish her a happy belated 84th birthday. I could tell from his expression and from reading the handy captions on our phone, Kate wasn’t getting it. I leaned over and mouthed

It wasn’t in your leg, dear, it was in your penis. That’s where a catheter is.

Which of course cracked us both up.

We weren’t cracking up last Thursday when we got home from the hospital. 55V1xr5eSDW3Ng94F5OOXQ I had sent this photo of him to our family, taken in the recovery room, showing him beaming in his lilac paper hospital gown, not yet un-numbing from the epidural he’d had. He repeatedly was asking me why we were in the hospital? What happened?

Every time he woke up, I told him again why we were there and what he’d had done. He just wanted to go home. And so we did by about 4:30 that day.

The next four days were painful, dulled only by the heavy doses of Extra Strength Tylenol. This was the darkest time. There’s little worse than seeing your partner in pain, and it started me on a sober accounting:

is the pain related to an advance of the cancer or just the catheter?
how to be with him as much as possible
when to take time off
how to notify family and friends
how to organize visits so they wouldn’t tire him out
the effects of stronger pain medications on his lovely presence and our quality of life
how much longer do we have

I really went there. I don’t think Jimmie was thinking about it that much, but was just hunkering down with the pain. He was completely distracted and therefore absent, which of course made me worry more. These issues are familiar, having gone through the loss of two other loved ones to cancer, and participating in their final days. But it’s different with your partner than your parent.

Finally, on Tuesday, the fifth day of watching Jimmie suffering in pain, I called his doctor and said we needed something stronger. We went in and much to our surprise, he said he could also remove the catheter. He also gave us a prescription for heavier pain meds; mercifully, we still haven’t had to fill that.

And then, within a day or two, the pain was gone. A miracle. No more Tylenol, the notebook where we’d been recording all the medication sitting on the table untouched now for five days. To say that we won’t resume at some point would be naive, but for now we are out of the woods.

Which brings me to the real reason I started this post. We’ve resumed our lives, the absence of pain and the catheter constantly reassuring. Last night we watched the film Phantom Thread, with Daniel Day Lewis and Vickey Krieps. IMDB summarizes the plot of the movie this way:

Set in 1950’s London, Reynolds Woodcock is a renowned dressmaker whose fastidious life is disrupted by a young, strong-willed woman, Alma, who becomes his muse and lover.

If you’ve seen the movie, you know that it is about so much more than that. For me, the title is a tidy metaphor for Jimmie’s short term memory loss.

We were having dinner tonight- some strange pesto chicken patties I’d gotten at Whole Foods, and sautéed zucchini, an orzo feta salad – when I made an offhanded remark about the texture of the chicken patties. They bordered on pre-chewed, but then I joked about Alma’s cooking from the movie.

Jimmie looked at me and said what movie?

You know, the movie about the couturier who lived in the big house with all the women working there to sew his dresses……..

I then went on to describe the rather bizarre turn the movie took. Aren’t I good to not spoil it for you?

Jimmie: Blank look.

Els: You don’t remember anything about the movie do you?

No, he said, calmly eating his zucchini.

What I love about Jimmie is that he doesn’t seem the least bit perturbed about his loss of short term memory. He is always so present so you could give a fig about whether you have to repeat a story. It used to bother me that when I came home he couldn’t remember what happened in Trumpville that day, but I can easily get caught up with about 10 minutes of CNN. And what a blessing for him that he doesn’t carry this toxic mental waste around like the rest of us have to.

My favorite of his new expressions is “In one head and out the other.”

Els: It doesn’t seem to bother you that you can’t remember details. That’s wonderful that it isn’t causing you worry.

Jimmie: I just feel sorry for you that I don’t remember.

Els: What are you kidding? I can repeat myself endlessly and you never get the least bit bored about what I’m saying. You don’t put your head down on the table and say, For crying out loud, that’s the sixth time you’ve told me that story!

He smiled across the table at me, and we resumed our companionable silence as we ate the rubbery patties. And now I’m worried that I have become Alma…